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The New Coffee Room

  1. TNCR
  2. General Discussion
  3. Parents don't give anti-rejection meds, son dies.

Parents don't give anti-rejection meds, son dies.

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  • 89th8 Offline
    89th8 Offline
    89th
    wrote on last edited by
    #19

    Ah yes. The donor. My FIL got a kidney transplant in July and I've become very familiar with the anti-rejection regiment and requirements. He's actually back at Mayo right now because his white bloodcell count is lower than expected, they think maybe an infection somewhere.

    1 Reply Last reply
    • LuFins DadL Offline
      LuFins DadL Offline
      LuFins Dad
      wrote on last edited by
      #20

      I was thinking more of the person further down the transplant list that didn’t receive a new heart…

      The Brad

      Doctor PhibesD 1 Reply Last reply
      • 89th8 Offline
        89th8 Offline
        89th
        wrote on last edited by
        #21

        Even moreso, wow. Lots of victims from this stupidity.

        1 Reply Last reply
        • LuFins DadL LuFins Dad

          I was thinking more of the person further down the transplant list that didn’t receive a new heart…

          Doctor PhibesD Offline
          Doctor PhibesD Offline
          Doctor Phibes
          wrote on last edited by
          #22

          @LuFins-Dad said in Parents don't give anti-rejection meds, son dies.:

          I was thinking more of the person further down the transplant list that didn’t receive a new heart…

          Yeah, that's an even bigger deal.

          Also, imagine how the parents of the donor feel.

          I was only joking

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          • MikM Offline
            MikM Offline
            Mik
            wrote on last edited by Mik
            #23

            I doubt they know who received it. Jon? But I still feel it. I have a friend who's on the heart transplant list. She's been living with an LVAD for over a year now.

            "The intelligent man who is proud of his intelligence is like the condemned man who is proud of his large cell." Simone Weil

            Doctor PhibesD 1 Reply Last reply
            • MikM Mik

              I doubt they know who received it. Jon? But I still feel it. I have a friend who's on the heart transplant list. She's been living with an LVAD for over a year now.

              Doctor PhibesD Offline
              Doctor PhibesD Offline
              Doctor Phibes
              wrote on last edited by
              #24

              @Mik said in Parents don't give anti-rejection meds, son dies.:

              I doubt they know who received it. Jon?

              Yeah, I'm not sure - but somebody who used to post here did know who he'd received his from. It was a big deal to him.

              I was only joking

              1 Reply Last reply
              • MikM Offline
                MikM Offline
                Mik
                wrote on last edited by
                #25

                I do remember that. KB it was.

                "The intelligent man who is proud of his intelligence is like the condemned man who is proud of his large cell." Simone Weil

                taiwan_girlT 1 Reply Last reply
                • jon-nycJ Offline
                  jon-nycJ Offline
                  jon-nyc
                  wrote on last edited by
                  #26

                  Right, so for HIPPA reasons the hospitals don’t share info.

                  However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

                  That’s what happened with KB

                  I can’t see these parents doing that.

                  Thank you for your attention to this matter.

                  MikM 1 Reply Last reply
                  • RainmanR Offline
                    RainmanR Offline
                    Rainman
                    wrote on last edited by
                    #27

                    Of course you know that I know that you know that I know what you mean. Wink. Double-wink.

                    1 Reply Last reply
                    • jon-nycJ jon-nyc

                      Right, so for HIPPA reasons the hospitals don’t share info.

                      However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

                      That’s what happened with KB

                      I can’t see these parents doing that.

                      MikM Offline
                      MikM Offline
                      Mik
                      wrote on last edited by
                      #28

                      @jon-nyc said in Parents don't give anti-rejection meds, son dies.:

                      Right, so for HIPPA reasons the hospitals don’t share info.

                      However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

                      That’s what happened with KB

                      I can’t see these parents doing that.

                      Yeah, I can't either. At this point I'd first question their literacy, the ability to actually do that. If they passed that I can think of a whole lot of other reasons why they wouldn't.

                      "The intelligent man who is proud of his intelligence is like the condemned man who is proud of his large cell." Simone Weil

                      1 Reply Last reply
                      • RainmanR Offline
                        RainmanR Offline
                        Rainman
                        wrote on last edited by
                        #29

                        There should have been better oversight and quick intervention. What good does time in jail do, or some sort of other penalty. Nada

                        1 Reply Last reply
                        • MikM Mik

                          I do remember that. KB it was.

                          taiwan_girlT Offline
                          taiwan_girlT Offline
                          taiwan_girl
                          wrote on last edited by
                          #30

                          @Mik said in Parents don't give anti-rejection meds, son dies.:

                          KB it was.

                          DOnt mean to derail the forum thread, but does anybody know what happened to him?

                          1 Reply Last reply
                          • MikM Offline
                            MikM Offline
                            Mik
                            wrote on last edited by
                            #31

                            He’s fine, still in Colorado as far as I know.

                            "The intelligent man who is proud of his intelligence is like the condemned man who is proud of his large cell." Simone Weil

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