Parents don't give anti-rejection meds, son dies.

[jon-nyc]

I mentioned several times here that a history of non-compliance will get you removed from the transplant list.

[taiwan_girl]

How sad.

Should not have been just involuntary manslaughter.

[brenda]

@taiwan_girl
Agreed. What a sad thing for the kid to go through all that, and be stuck with parents like that.

[Renauda]

@LuFins-Dad said in Parents don't give anti-rejection meds, son dies.:

There’s another victim in all of this…

So true.

[89th]

[89th]

Looks like a winner

Yeah when she said the kid missed two doses per week, you know it was way more than that. That’s like asking a drunk driver how many drinks they’ve had “oh one or two” is usually the false answer

[89th]

Who’s the other victim, the surgeon? Sorry it’s late and I’m tired.

[Doctor Phibes]

@89th said in Parents don't give anti-rejection meds, son dies.:

Who’s the other victim, the surgeon? Sorry it’s late and I’m tired.

The donor

[Mik]

Consider the contrast between the donor and these miscreant parents. One could hardly think them the same species.

[89th]

Ah yes. The donor. My FIL got a kidney transplant in July and I've become very familiar with the anti-rejection regiment and requirements. He's actually back at Mayo right now because his white bloodcell count is lower than expected, they think maybe an infection somewhere.

[LuFins Dad]

I was thinking more of the person further down the transplant list that didn’t receive a new heart…

[89th]

Even moreso, wow. Lots of victims from this stupidity.

[Doctor Phibes]

@LuFins-Dad said in Parents don't give anti-rejection meds, son dies.:

I was thinking more of the person further down the transplant list that didn’t receive a new heart…

Yeah, that's an even bigger deal.

Also, imagine how the parents of the donor feel.

[Mik]

I doubt they know who received it. Jon? But I still feel it. I have a friend who's on the heart transplant list. She's been living with an LVAD for over a year now.

[Doctor Phibes]

@Mik said in Parents don't give anti-rejection meds, son dies.:

I doubt they know who received it. Jon?

Yeah, I'm not sure - but somebody who used to post here did know who he'd received his from. It was a big deal to him.

[Mik]

I do remember that. KB it was.

[jon-nyc]

Right, so for HIPPA reasons the hospitals don’t share info.

However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

That’s what happened with KB

I can’t see these parents doing that.

[Rainman]

Of course you know that I know that you know that I know what you mean. Wink. Double-wink.

[Mik]

@jon-nyc said in Parents don't give anti-rejection meds, son dies.:

Right, so for HIPPA reasons the hospitals don’t share info.

However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

That’s what happened with KB

I can’t see these parents doing that.

Yeah, I can't either. At this point I'd first question their literacy, the ability to actually do that. If they passed that I can think of a whole lot of other reasons why they wouldn't.

[Rainman]

There should have been better oversight and quick intervention. What good does time in jail do, or some sort of other penalty. Nada