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The New Coffee Room

  1. TNCR
  2. General Discussion
  3. Parents don't give anti-rejection meds, son dies.

Parents don't give anti-rejection meds, son dies.

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  • 89th8 Offline
    89th8 Offline
    89th
    wrote on last edited by
    #19

    Ah yes. The donor. My FIL got a kidney transplant in July and I've become very familiar with the anti-rejection regiment and requirements. He's actually back at Mayo right now because his white bloodcell count is lower than expected, they think maybe an infection somewhere.

    1 Reply Last reply
    • LuFins DadL Offline
      LuFins DadL Offline
      LuFins Dad
      wrote on last edited by
      #20

      I was thinking more of the person further down the transplant list that didn’t receive a new heart…

      The Brad

      Doctor PhibesD 1 Reply Last reply
      • 89th8 Offline
        89th8 Offline
        89th
        wrote on last edited by
        #21

        Even moreso, wow. Lots of victims from this stupidity.

        1 Reply Last reply
        • LuFins DadL LuFins Dad

          I was thinking more of the person further down the transplant list that didn’t receive a new heart…

          Doctor PhibesD Online
          Doctor PhibesD Online
          Doctor Phibes
          wrote on last edited by
          #22

          @LuFins-Dad said in Parents don't give anti-rejection meds, son dies.:

          I was thinking more of the person further down the transplant list that didn’t receive a new heart…

          Yeah, that's an even bigger deal.

          Also, imagine how the parents of the donor feel.

          I was only joking

          1 Reply Last reply
          • MikM Away
            MikM Away
            Mik
            wrote on last edited by Mik
            #23

            I doubt they know who received it. Jon? But I still feel it. I have a friend who's on the heart transplant list. She's been living with an LVAD for over a year now.

            "You cannot subsidize irresponsibility and expect people to become more responsible." — Thomas Sowell

            Doctor PhibesD 1 Reply Last reply
            • MikM Mik

              I doubt they know who received it. Jon? But I still feel it. I have a friend who's on the heart transplant list. She's been living with an LVAD for over a year now.

              Doctor PhibesD Online
              Doctor PhibesD Online
              Doctor Phibes
              wrote on last edited by
              #24

              @Mik said in Parents don't give anti-rejection meds, son dies.:

              I doubt they know who received it. Jon?

              Yeah, I'm not sure - but somebody who used to post here did know who he'd received his from. It was a big deal to him.

              I was only joking

              1 Reply Last reply
              • MikM Away
                MikM Away
                Mik
                wrote on last edited by
                #25

                I do remember that. KB it was.

                "You cannot subsidize irresponsibility and expect people to become more responsible." — Thomas Sowell

                taiwan_girlT 1 Reply Last reply
                • jon-nycJ Offline
                  jon-nycJ Offline
                  jon-nyc
                  wrote on last edited by
                  #26

                  Right, so for HIPPA reasons the hospitals don’t share info.

                  However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

                  That’s what happened with KB

                  I can’t see these parents doing that.

                  If you don't take it, it can only good happen.

                  MikM 1 Reply Last reply
                  • RainmanR Offline
                    RainmanR Offline
                    Rainman
                    wrote on last edited by
                    #27

                    Of course you know that I know that you know that I know what you mean. Wink. Double-wink.

                    1 Reply Last reply
                    • jon-nycJ jon-nyc

                      Right, so for HIPPA reasons the hospitals don’t share info.

                      However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

                      That’s what happened with KB

                      I can’t see these parents doing that.

                      MikM Away
                      MikM Away
                      Mik
                      wrote on last edited by
                      #28

                      @jon-nyc said in Parents don't give anti-rejection meds, son dies.:

                      Right, so for HIPPA reasons the hospitals don’t share info.

                      However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

                      That’s what happened with KB

                      I can’t see these parents doing that.

                      Yeah, I can't either. At this point I'd first question their literacy, the ability to actually do that. If they passed that I can think of a whole lot of other reasons why they wouldn't.

                      "You cannot subsidize irresponsibility and expect people to become more responsible." — Thomas Sowell

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                      • RainmanR Offline
                        RainmanR Offline
                        Rainman
                        wrote on last edited by
                        #29

                        There should have been better oversight and quick intervention. What good does time in jail do, or some sort of other penalty. Nada

                        1 Reply Last reply
                        • MikM Mik

                          I do remember that. KB it was.

                          taiwan_girlT Offline
                          taiwan_girlT Offline
                          taiwan_girl
                          wrote on last edited by
                          #30

                          @Mik said in Parents don't give anti-rejection meds, son dies.:

                          KB it was.

                          DOnt mean to derail the forum thread, but does anybody know what happened to him?

                          1 Reply Last reply
                          • MikM Away
                            MikM Away
                            Mik
                            wrote on last edited by
                            #31

                            He’s fine, still in Colorado as far as I know.

                            "You cannot subsidize irresponsibility and expect people to become more responsible." — Thomas Sowell

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