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The New Coffee Room

  1. TNCR
  2. General Discussion
  3. Parents don't give anti-rejection meds, son dies.

Parents don't give anti-rejection meds, son dies.

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  • MikM Offline
    MikM Offline
    Mik
    wrote on last edited by
    #18

    Consider the contrast between the donor and these miscreant parents. One could hardly think them the same species.

    "The intelligent man who is proud of his intelligence is like the condemned man who is proud of his large cell." Simone Weil

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    • 89th8 Offline
      89th8 Offline
      89th
      wrote on last edited by
      #19

      Ah yes. The donor. My FIL got a kidney transplant in July and I've become very familiar with the anti-rejection regiment and requirements. He's actually back at Mayo right now because his white bloodcell count is lower than expected, they think maybe an infection somewhere.

      1 Reply Last reply
      • LuFins DadL Offline
        LuFins DadL Offline
        LuFins Dad
        wrote on last edited by
        #20

        I was thinking more of the person further down the transplant list that didn’t receive a new heart…

        The Brad

        Doctor PhibesD 1 Reply Last reply
        • 89th8 Offline
          89th8 Offline
          89th
          wrote on last edited by
          #21

          Even moreso, wow. Lots of victims from this stupidity.

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          • LuFins DadL LuFins Dad

            I was thinking more of the person further down the transplant list that didn’t receive a new heart…

            Doctor PhibesD Offline
            Doctor PhibesD Offline
            Doctor Phibes
            wrote on last edited by
            #22

            @LuFins-Dad said in Parents don't give anti-rejection meds, son dies.:

            I was thinking more of the person further down the transplant list that didn’t receive a new heart…

            Yeah, that's an even bigger deal.

            Also, imagine how the parents of the donor feel.

            I was only joking

            1 Reply Last reply
            • MikM Offline
              MikM Offline
              Mik
              wrote on last edited by Mik
              #23

              I doubt they know who received it. Jon? But I still feel it. I have a friend who's on the heart transplant list. She's been living with an LVAD for over a year now.

              "The intelligent man who is proud of his intelligence is like the condemned man who is proud of his large cell." Simone Weil

              Doctor PhibesD 1 Reply Last reply
              • MikM Mik

                I doubt they know who received it. Jon? But I still feel it. I have a friend who's on the heart transplant list. She's been living with an LVAD for over a year now.

                Doctor PhibesD Offline
                Doctor PhibesD Offline
                Doctor Phibes
                wrote on last edited by
                #24

                @Mik said in Parents don't give anti-rejection meds, son dies.:

                I doubt they know who received it. Jon?

                Yeah, I'm not sure - but somebody who used to post here did know who he'd received his from. It was a big deal to him.

                I was only joking

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                • MikM Offline
                  MikM Offline
                  Mik
                  wrote on last edited by
                  #25

                  I do remember that. KB it was.

                  "The intelligent man who is proud of his intelligence is like the condemned man who is proud of his large cell." Simone Weil

                  taiwan_girlT 1 Reply Last reply
                  • jon-nycJ Offline
                    jon-nycJ Offline
                    jon-nyc
                    wrote on last edited by
                    #26

                    Right, so for HIPPA reasons the hospitals don’t share info.

                    However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

                    That’s what happened with KB

                    I can’t see these parents doing that.

                    Thank you for your attention to this matter.

                    MikM 1 Reply Last reply
                    • RainmanR Offline
                      RainmanR Offline
                      Rainman
                      wrote on last edited by
                      #27

                      Of course you know that I know that you know that I know what you mean. Wink. Double-wink.

                      1 Reply Last reply
                      • jon-nycJ jon-nyc

                        Right, so for HIPPA reasons the hospitals don’t share info.

                        However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

                        That’s what happened with KB

                        I can’t see these parents doing that.

                        MikM Offline
                        MikM Offline
                        Mik
                        wrote on last edited by
                        #28

                        @jon-nyc said in Parents don't give anti-rejection meds, son dies.:

                        Right, so for HIPPA reasons the hospitals don’t share info.

                        However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

                        That’s what happened with KB

                        I can’t see these parents doing that.

                        Yeah, I can't either. At this point I'd first question their literacy, the ability to actually do that. If they passed that I can think of a whole lot of other reasons why they wouldn't.

                        "The intelligent man who is proud of his intelligence is like the condemned man who is proud of his large cell." Simone Weil

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                        • RainmanR Offline
                          RainmanR Offline
                          Rainman
                          wrote on last edited by
                          #29

                          There should have been better oversight and quick intervention. What good does time in jail do, or some sort of other penalty. Nada

                          1 Reply Last reply
                          • MikM Mik

                            I do remember that. KB it was.

                            taiwan_girlT Offline
                            taiwan_girlT Offline
                            taiwan_girl
                            wrote on last edited by
                            #30

                            @Mik said in Parents don't give anti-rejection meds, son dies.:

                            KB it was.

                            DOnt mean to derail the forum thread, but does anybody know what happened to him?

                            1 Reply Last reply
                            • MikM Offline
                              MikM Offline
                              Mik
                              wrote on last edited by
                              #31

                              He’s fine, still in Colorado as far as I know.

                              "The intelligent man who is proud of his intelligence is like the condemned man who is proud of his large cell." Simone Weil

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