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The New Coffee Room

  1. TNCR
  2. General Discussion
  3. Dementia is a cruel condition.

Dementia is a cruel condition.

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  • markM Offline
    markM Offline
    mark
    wrote last edited by
    #1

    My Mother in law.

    I might have mentioned this but she went down the dark path of dementia and she was living with us in 2016 until the beginning of 2020.

    She was at an assisted living facility until March of this year when they gave her a 30 day notice of eviction to their memory care facility which was $12k per month.

    We prepared a room for her here at the house. New carpet, paint, new bedroom set including bed, recliner, dresser and nightstand. It was our "Master Bedroom for the past 28 years. We also renovated my daughters bedroom and moved into the acual "master beddrom". All of our daughters called it their room at one time or another over the 26 years that they lived here at home.

    Taking care of a loved one with severe dementia is exhausting, physically and mentally. It was one of the hardest tasks I have ever participated in over the course of my 63 years on this rock.

    Sarah, (Mrs Mark) did an incredible job once again taking over the role of primary caregiver. We had mom here for about 3 months and it seemed that we were living in a "Groundhog Day" movie scenario. That's what we called it anyway. Mom was stuck in a world that made no sense to her. She could never grasp the concept of her location, even in the house. She called Sarah, "mommy" heck, she called me "mommy" too.

    We called the local ADRC office and made an appointment to have them visit and meet Maxine and us and to assess her current condition. Hospice was recommended as she was starting to decline pretty quickly.

    She moved out on June 6 and into a wonderful memory care facility which was far more "affordable" at $7,500 per month.

    She was there less than a month and died yesterday early evening.

    Maxine was 80 years old.

    Rest in peace, Mom.

    1 Reply Last reply
    • jon-nycJ Offline
      jon-nycJ Offline
      jon-nyc
      wrote last edited by
      #2

      Sorry for your loss Mark.

      We are losing my brother-in-law to Frontotemporal Dimensia at this time as well. He’s in his early 60s.

      "You never know what worse luck your bad luck has saved you from."
      -Cormac McCarthy

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      • RichR Offline
        RichR Offline
        Rich
        wrote last edited by
        #3

        RIP to your mother in law. It's fortunate she had family that was able to care for her/look out for her during those years. It's difficult to think about what happens for those who have no people on their side able to help.

        1 Reply Last reply
        • AxtremusA Offline
          AxtremusA Offline
          Axtremus
          wrote last edited by
          #4

          My condolences.

          1 Reply Last reply
          • MikM Offline
            MikM Offline
            Mik
            wrote last edited by
            #5

            Cruel indeed. Very loving of you to take her into your home. I know we had only moved my MIL to memory care for a month or so before she passed. It’s tough.

            “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

            1 Reply Last reply
            • RenaudaR Offline
              RenaudaR Offline
              Renauda
              wrote last edited by Renauda
              #6

              My condolences to you and your family, Mark. My father’s second wife, a WWII RCAF veteran, was stricken with a form of dementia that ultimately took her in 2008. He was with her at her side throughout.

              Elbows up!

              1 Reply Last reply
              • taiwan_girlT Offline
                taiwan_girlT Offline
                taiwan_girl
                wrote last edited by
                #7

                Hugs to you @mark

                Yes, dementia seems to be much harder on the care-givers than on the patient.

                I have a friend in the US (maybe late 50's year old) who has a mom with dementia. She is in an assisted living place like you mention. It is one of those "age in place" and his mom has moved through the stages (starting at independent apartment living) to the most intensive assisted living.

                He and his wife just found out that his wife was diagnosed with early dementia. :(. He said that while he really likes the place his mom is at and has received great care there, he realizes that he may be moving there sooner than he expected.

                1 Reply Last reply
                • Tom-KT Offline
                  Tom-KT Offline
                  Tom-K
                  wrote last edited by
                  #8

                  Mark, sorry for your loss and sorry you had to go through that hardship.

                  Flushing the toilet is like practicing the piano; you just cannot go too long without doing it.--Axtremus

                  1 Reply Last reply
                  • bachophileB Offline
                    bachophileB Offline
                    bachophile
                    wrote last edited by
                    #9

                    may her memory be a blessing, especially the good memories when she was cognitive...., take comfort in those and not the difficult ones at the end

                    1 Reply Last reply
                    • C Offline
                      C Offline
                      cathys
                      wrote last edited by
                      #10

                      Mark - So sorry for your yours and Sarah's loss. It's like you go through two sets of mourning with Dementia - For the person who is no longer there and then again after they are physically gone. Hugs to you both

                      1 Reply Last reply
                      • HoraceH Offline
                        HoraceH Offline
                        Horace
                        wrote last edited by
                        #11

                        That is a tough road. You did a good job with it.

                        Education is extremely important.

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