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The New Coffee Room

  1. TNCR
  2. General Discussion
  3. It gets personal

It gets personal

Scheduled Pinned Locked Moved General Discussion
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  • AxtremusA Offline
    AxtremusA Offline
    Axtremus
    wrote on last edited by
    #14

    GoFundMe?

    1 Reply Last reply
    • AxtremusA Offline
      AxtremusA Offline
      Axtremus
      wrote on last edited by
      #15

      Is stem cell involved?
      If not, maybe the churches can step in.

      1 Reply Last reply
      • jon-nycJ Online
        jon-nycJ Online
        jon-nyc
        wrote on last edited by jon-nyc
        #16

        It was a single U Grant originally for $6MM. I'm not exactly sure how much has been billed against it, my guess is roughly half.

        We're looking into the possibility that one or two other center might be able to invoice the NIH directly for their participation based on the way the grant is worded, which would help. We will also fundraise against it both from interested biotechs and patients. We will also have patients send letters, especially patients in Alabama, North Carolina, South Carolina, and Utah which all have GOP senators and affected centers.

        Senator Thom Tillis may not see the logic in cutting rare disease funding at UNC because Hamilton Hall was occupied last year. Ditto Mike Lee and UU.

        Only non-witches get due process.

        • Cotton Mather, Salem Massachusetts, 1692
        1 Reply Last reply
        • jon-nycJ jon-nyc

          We lost our funding last night.

          X Offline
          X Offline
          xenon
          wrote on last edited by
          #17

          @jon-nyc said in It gets personal:

          We lost our funding last night.

          That’s a bummer. Hopefully the work can continue.

          1 Reply Last reply
          • MikM Away
            MikM Away
            Mik
            wrote on last edited by
            #18

            I’m working with both UNC and U of Utah now, plus Wake Forest.

            “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

            1 Reply Last reply
            • B Offline
              B Offline
              blondie
              wrote on last edited by
              #19

              I’m sorry @jon-nyc . You and your colleagues are smart though. I’m confident you’ll find a solution.

              1 Reply Last reply
              • jon-nycJ Online
                jon-nycJ Online
                jon-nyc
                wrote on last edited by
                #20

                The work won't end, it's too important, we won't let it.

                The bigger fear is what happens with research and clinical trials generally if the indirects get cut overnight. That's too much for a little foundation to backstop.

                Only non-witches get due process.

                • Cotton Mather, Salem Massachusetts, 1692
                1 Reply Last reply
                • MikM Away
                  MikM Away
                  Mik
                  wrote on last edited by
                  #21

                  I can see cutting future grants. Cutting active studies, especially clinical trials, is exceptionally wasteful.

                  “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                  AxtremusA 1 Reply Last reply
                  • MikM Mik

                    I can see cutting future grants. Cutting active studies, especially clinical trials, is exceptionally wasteful.

                    AxtremusA Offline
                    AxtremusA Offline
                    Axtremus
                    wrote on last edited by
                    #22

                    @Mik said in It gets personal:

                    Cutting active studies, especially clinical trials, is exceptionally wasteful.

                    This is more appreciated in the biomed fields but less appreciated in the computer/infotech fields.

                    1 Reply Last reply
                    • taiwan_girlT Online
                      taiwan_girlT Online
                      taiwan_girl
                      wrote on last edited by
                      #23

                      Sorry for the thread hijack, but another area where the funding cuts are somewhat personal. A (distant) friend works in the Soybean Innovation Lab at the University of IL. They have lost their funding and are in the process of closing.

                      Illinois is the leading producer of soybeans in the United States, and the industry is crucial to Illinois’ economy. According to the Illinois Department of Agriculture, Illinois is the nation’s second-leading exporter of soybeans and ranks third in the export of agricultural goods as a whole, earning over $8 billion worth.

                      https://soybeaninnovationlab.illinois.edu

                      1 Reply Last reply
                      • jon-nycJ Online
                        jon-nycJ Online
                        jon-nyc
                        wrote on last edited by jon-nyc
                        #24

                        Johns Hopkins laid off 2k workers yesterday.

                        Only non-witches get due process.

                        • Cotton Mather, Salem Massachusetts, 1692
                        1 Reply Last reply
                        • HoraceH Online
                          HoraceH Online
                          Horace
                          wrote on last edited by Horace
                          #25

                          That's 247 American jobs and 2000 jobs in other countries.

                          https://thedailyrecord.com/2025/03/13/johns-hopkins-university-to-cut-2200-jobs-amid-lost-federal-funding/

                          Education is extremely important.

                          1 Reply Last reply
                          • jon-nycJ Online
                            jon-nycJ Online
                            jon-nyc
                            wrote on last edited by
                            #26

                            I can feel America getting greater already.

                            Only non-witches get due process.

                            • Cotton Mather, Salem Massachusetts, 1692
                            1 Reply Last reply
                            • MikM Away
                              MikM Away
                              Mik
                              wrote on last edited by Mik
                              #27

                              I thought the blanket J6 pardon smacked of laziness. Seems that is a trend. I approve of the goals but not the means.

                              “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                              HoraceH 1 Reply Last reply
                              • RenaudaR Offline
                                RenaudaR Offline
                                Renauda
                                wrote on last edited by
                                #28

                                Sorry to learn of this jon. It seems so wasteful given the practical medical benefit that would have resulted. But as Blondie pointed out you and your team are smart, you’ll find a way.

                                Elbows up!

                                1 Reply Last reply
                                • JollyJ Offline
                                  JollyJ Offline
                                  Jolly
                                  wrote on last edited by
                                  #29

                                  There will be blood.

                                  I've already given the roasted chicken example. I think that's what will be done.

                                  “Cry havoc and let slip the DOGE of war!”

                                  Those who cheered as J-6 American prisoners were locked in solitary for 18 months without trial, now suddenly fight tooth and nail for foreign terrorists’ "due process". — Buck Sexton

                                  1 Reply Last reply
                                  • MikM Mik

                                    I thought the blanket J6 pardon smacked of laziness. Seems that is a trend. I approve of the goals but not the means.

                                    HoraceH Online
                                    HoraceH Online
                                    Horace
                                    wrote on last edited by
                                    #30

                                    @Mik said in It gets personal:

                                    I thought the blanket J6 pardon smacked of laziness. Seems that is a trend. I approve of the goals but not the means.

                                    I don't think it's clear what those 2000 citizens of other countries were being paid to do, by the US taxpayers. This may or may not be a tragedy. But per se, it's what Maga was voted in to do.

                                    Education is extremely important.

                                    1 Reply Last reply
                                    • MikM Away
                                      MikM Away
                                      Mik
                                      wrote on last edited by
                                      #31

                                      That’s one example only and related to USAID. How many offshore employees did Jon’s study employ?

                                      I think my point on laziness stands.

                                      “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                                      HoraceH 1 Reply Last reply
                                      • MikM Mik

                                        That’s one example only and related to USAID. How many offshore employees did Jon’s study employ?

                                        I think my point on laziness stands.

                                        HoraceH Online
                                        HoraceH Online
                                        Horace
                                        wrote on last edited by
                                        #32

                                        @Mik said in It gets personal:

                                        That’s one example only and related to USAID. How many offshore employees did Jon’s study employ?

                                        I think my point on laziness stands.

                                        I'm lost regarding what we're actually talking about, but 83% of USAID programs were cut, after a 6 week review. We don't have any information about the Johns Hopkins programs that were cut, but I am sure it's safe to say that "people will die" narratives can be crafted. Cuts are hard, as those of us in the private sector who've been surrounded by layoffs our entire working lives will attest to. But I'm not going to get too precious about it.

                                        Education is extremely important.

                                        1 Reply Last reply
                                        • kluursK Offline
                                          kluursK Offline
                                          kluurs
                                          wrote on last edited by
                                          #33

                                          We're feeling it as well. My spouse's grant has been slated for termination. She's appealing and looking at alternative funding. It is challenging to think what the environment is going to be in a couple of months - let alone, years. She's done research on nerve regeneration involved in urologic conditions.

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