It gets personal

[Jolly]

Other possible grants?

[Axtremus]

Try China?

[Mik]

How were you funded and what percentage? Was it one grant or more?

[Axtremus]

GoFundMe?

[Axtremus]

Is stem cell involved?
If not, maybe the churches can step in.

[jon-nyc]

It was a single U Grant originally for $6MM. I'm not exactly sure how much has been billed against it, my guess is roughly half.

We're looking into the possibility that one or two other center might be able to invoice the NIH directly for their participation based on the way the grant is worded, which would help. We will also fundraise against it both from interested biotechs and patients. We will also have patients send letters, especially patients in Alabama, North Carolina, South Carolina, and Utah which all have GOP senators and affected centers.

Senator Thom Tillis may not see the logic in cutting rare disease funding at UNC because Hamilton Hall was occupied last year. Ditto Mike Lee and UU.

[xenon]

@jon-nyc said in It gets personal:

We lost our funding last night.

That’s a bummer. Hopefully the work can continue.

[Mik]

I’m working with both UNC and U of Utah now, plus Wake Forest.

[blondie]

I’m sorry @jon-nyc . You and your colleagues are smart though. I’m confident you’ll find a solution.

[jon-nyc]

The work won't end, it's too important, we won't let it.

The bigger fear is what happens with research and clinical trials generally if the indirects get cut overnight. That's too much for a little foundation to backstop.

[Mik]

I can see cutting future grants. Cutting active studies, especially clinical trials, is exceptionally wasteful.

[Axtremus]

@Mik said in It gets personal:

Cutting active studies, especially clinical trials, is exceptionally wasteful.

This is more appreciated in the biomed fields but less appreciated in the computer/infotech fields.

[taiwan_girl]

Sorry for the thread hijack, but another area where the funding cuts are somewhat personal. A (distant) friend works in the Soybean Innovation Lab at the University of IL. They have lost their funding and are in the process of closing.

Illinois is the leading producer of soybeans in the United States, and the industry is crucial to Illinois’ economy. According to the Illinois Department of Agriculture, Illinois is the nation’s second-leading exporter of soybeans and ranks third in the export of agricultural goods as a whole, earning over $8 billion worth.

https://soybeaninnovationlab.illinois.edu

[jon-nyc]

Johns Hopkins laid off 2k workers yesterday.

[Horace]

That's 247 American jobs and 2000 jobs in other countries.

https://thedailyrecord.com/2025/03/13/johns-hopkins-university-to-cut-2200-jobs-amid-lost-federal-funding/

[jon-nyc]

I can feel America getting greater already.

[Mik]

I thought the blanket J6 pardon smacked of laziness. Seems that is a trend. I approve of the goals but not the means.

[Renauda]

Sorry to learn of this jon. It seems so wasteful given the practical medical benefit that would have resulted. But as Blondie pointed out you and your team are smart, you’ll find a way.

[Jolly]

There will be blood.

I've already given the roasted chicken example. I think that's what will be done.

[Horace]

@Mik said in It gets personal:

I thought the blanket J6 pardon smacked of laziness. Seems that is a trend. I approve of the goals but not the means.

I don't think it's clear what those 2000 citizens of other countries were being paid to do, by the US taxpayers. This may or may not be a tragedy. But per se, it's what Maga was voted in to do.