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The New Coffee Room

  1. TNCR
  2. General Discussion
  3. It gets personal

It gets personal

Scheduled Pinned Locked Moved General Discussion
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  • AxtremusA Away
    AxtremusA Away
    Axtremus
    wrote on last edited by
    #12

    Try China?

    1 Reply Last reply
    • MikM Away
      MikM Away
      Mik
      wrote on last edited by
      #13

      How were you funded and what percentage? Was it one grant or more?

      “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

      1 Reply Last reply
      • AxtremusA Away
        AxtremusA Away
        Axtremus
        wrote on last edited by
        #14

        GoFundMe?

        1 Reply Last reply
        • AxtremusA Away
          AxtremusA Away
          Axtremus
          wrote on last edited by
          #15

          Is stem cell involved?
          If not, maybe the churches can step in.

          1 Reply Last reply
          • jon-nycJ Offline
            jon-nycJ Offline
            jon-nyc
            wrote on last edited by jon-nyc
            #16

            It was a single U Grant originally for $6MM. I'm not exactly sure how much has been billed against it, my guess is roughly half.

            We're looking into the possibility that one or two other center might be able to invoice the NIH directly for their participation based on the way the grant is worded, which would help. We will also fundraise against it both from interested biotechs and patients. We will also have patients send letters, especially patients in Alabama, North Carolina, South Carolina, and Utah which all have GOP senators and affected centers.

            Senator Thom Tillis may not see the logic in cutting rare disease funding at UNC because Hamilton Hall was occupied last year. Ditto Mike Lee and UU.

            "You never know what worse luck your bad luck has saved you from."
            -Cormac McCarthy

            1 Reply Last reply
            • jon-nycJ jon-nyc

              We lost our funding last night.

              X Offline
              X Offline
              xenon
              wrote on last edited by
              #17

              @jon-nyc said in It gets personal:

              We lost our funding last night.

              That’s a bummer. Hopefully the work can continue.

              1 Reply Last reply
              • MikM Away
                MikM Away
                Mik
                wrote on last edited by
                #18

                I’m working with both UNC and U of Utah now, plus Wake Forest.

                “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                1 Reply Last reply
                • B Offline
                  B Offline
                  blondie
                  wrote on last edited by
                  #19

                  I’m sorry @jon-nyc . You and your colleagues are smart though. I’m confident you’ll find a solution.

                  1 Reply Last reply
                  • jon-nycJ Offline
                    jon-nycJ Offline
                    jon-nyc
                    wrote on last edited by
                    #20

                    The work won't end, it's too important, we won't let it.

                    The bigger fear is what happens with research and clinical trials generally if the indirects get cut overnight. That's too much for a little foundation to backstop.

                    "You never know what worse luck your bad luck has saved you from."
                    -Cormac McCarthy

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                    • MikM Away
                      MikM Away
                      Mik
                      wrote on last edited by
                      #21

                      I can see cutting future grants. Cutting active studies, especially clinical trials, is exceptionally wasteful.

                      “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                      AxtremusA 1 Reply Last reply
                      • MikM Mik

                        I can see cutting future grants. Cutting active studies, especially clinical trials, is exceptionally wasteful.

                        AxtremusA Away
                        AxtremusA Away
                        Axtremus
                        wrote on last edited by
                        #22

                        @Mik said in It gets personal:

                        Cutting active studies, especially clinical trials, is exceptionally wasteful.

                        This is more appreciated in the biomed fields but less appreciated in the computer/infotech fields.

                        1 Reply Last reply
                        • taiwan_girlT Online
                          taiwan_girlT Online
                          taiwan_girl
                          wrote on last edited by
                          #23

                          Sorry for the thread hijack, but another area where the funding cuts are somewhat personal. A (distant) friend works in the Soybean Innovation Lab at the University of IL. They have lost their funding and are in the process of closing.

                          Illinois is the leading producer of soybeans in the United States, and the industry is crucial to Illinois’ economy. According to the Illinois Department of Agriculture, Illinois is the nation’s second-leading exporter of soybeans and ranks third in the export of agricultural goods as a whole, earning over $8 billion worth.

                          https://soybeaninnovationlab.illinois.edu

                          1 Reply Last reply
                          • jon-nycJ Offline
                            jon-nycJ Offline
                            jon-nyc
                            wrote on last edited by jon-nyc
                            #24

                            Johns Hopkins laid off 2k workers yesterday.

                            "You never know what worse luck your bad luck has saved you from."
                            -Cormac McCarthy

                            1 Reply Last reply
                            • HoraceH Offline
                              HoraceH Offline
                              Horace
                              wrote on last edited by Horace
                              #25

                              That's 247 American jobs and 2000 jobs in other countries.

                              https://thedailyrecord.com/2025/03/13/johns-hopkins-university-to-cut-2200-jobs-amid-lost-federal-funding/

                              Education is extremely important.

                              1 Reply Last reply
                              • jon-nycJ Offline
                                jon-nycJ Offline
                                jon-nyc
                                wrote on last edited by
                                #26

                                I can feel America getting greater already.

                                "You never know what worse luck your bad luck has saved you from."
                                -Cormac McCarthy

                                1 Reply Last reply
                                • MikM Away
                                  MikM Away
                                  Mik
                                  wrote on last edited by Mik
                                  #27

                                  I thought the blanket J6 pardon smacked of laziness. Seems that is a trend. I approve of the goals but not the means.

                                  “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                                  HoraceH 1 Reply Last reply
                                  • RenaudaR Offline
                                    RenaudaR Offline
                                    Renauda
                                    wrote on last edited by
                                    #28

                                    Sorry to learn of this jon. It seems so wasteful given the practical medical benefit that would have resulted. But as Blondie pointed out you and your team are smart, you’ll find a way.

                                    Elbows up!

                                    1 Reply Last reply
                                    • JollyJ Offline
                                      JollyJ Offline
                                      Jolly
                                      wrote on last edited by
                                      #29

                                      There will be blood.

                                      I've already given the roasted chicken example. I think that's what will be done.

                                      “Cry havoc and let slip the DOGE of war!”

                                      Those who cheered as J-6 American prisoners were locked in solitary for 18 months without trial, now suddenly fight tooth and nail for foreign terrorists’ "due process". — Buck Sexton

                                      1 Reply Last reply
                                      • MikM Mik

                                        I thought the blanket J6 pardon smacked of laziness. Seems that is a trend. I approve of the goals but not the means.

                                        HoraceH Offline
                                        HoraceH Offline
                                        Horace
                                        wrote on last edited by
                                        #30

                                        @Mik said in It gets personal:

                                        I thought the blanket J6 pardon smacked of laziness. Seems that is a trend. I approve of the goals but not the means.

                                        I don't think it's clear what those 2000 citizens of other countries were being paid to do, by the US taxpayers. This may or may not be a tragedy. But per se, it's what Maga was voted in to do.

                                        Education is extremely important.

                                        1 Reply Last reply
                                        • MikM Away
                                          MikM Away
                                          Mik
                                          wrote on last edited by
                                          #31

                                          That’s one example only and related to USAID. How many offshore employees did Jon’s study employ?

                                          I think my point on laziness stands.

                                          “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                                          HoraceH 1 Reply Last reply
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