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The New Coffee Room

  1. TNCR
  2. General Discussion
  3. It gets personal

It gets personal

Scheduled Pinned Locked Moved General Discussion
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  • MikM Away
    MikM Away
    Mik
    wrote on last edited by
    #13

    How were you funded and what percentage? Was it one grant or more?

    “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

    1 Reply Last reply
    • AxtremusA Away
      AxtremusA Away
      Axtremus
      wrote on last edited by
      #14

      GoFundMe?

      1 Reply Last reply
      • AxtremusA Away
        AxtremusA Away
        Axtremus
        wrote on last edited by
        #15

        Is stem cell involved?
        If not, maybe the churches can step in.

        1 Reply Last reply
        • jon-nycJ Offline
          jon-nycJ Offline
          jon-nyc
          wrote on last edited by jon-nyc
          #16

          It was a single U Grant originally for $6MM. I'm not exactly sure how much has been billed against it, my guess is roughly half.

          We're looking into the possibility that one or two other center might be able to invoice the NIH directly for their participation based on the way the grant is worded, which would help. We will also fundraise against it both from interested biotechs and patients. We will also have patients send letters, especially patients in Alabama, North Carolina, South Carolina, and Utah which all have GOP senators and affected centers.

          Senator Thom Tillis may not see the logic in cutting rare disease funding at UNC because Hamilton Hall was occupied last year. Ditto Mike Lee and UU.

          "You never know what worse luck your bad luck has saved you from."
          -Cormac McCarthy

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          • jon-nycJ jon-nyc

            We lost our funding last night.

            X Offline
            X Offline
            xenon
            wrote on last edited by
            #17

            @jon-nyc said in It gets personal:

            We lost our funding last night.

            That’s a bummer. Hopefully the work can continue.

            1 Reply Last reply
            • MikM Away
              MikM Away
              Mik
              wrote on last edited by
              #18

              I’m working with both UNC and U of Utah now, plus Wake Forest.

              “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

              1 Reply Last reply
              • B Offline
                B Offline
                blondie
                wrote on last edited by
                #19

                I’m sorry @jon-nyc . You and your colleagues are smart though. I’m confident you’ll find a solution.

                1 Reply Last reply
                • jon-nycJ Offline
                  jon-nycJ Offline
                  jon-nyc
                  wrote on last edited by
                  #20

                  The work won't end, it's too important, we won't let it.

                  The bigger fear is what happens with research and clinical trials generally if the indirects get cut overnight. That's too much for a little foundation to backstop.

                  "You never know what worse luck your bad luck has saved you from."
                  -Cormac McCarthy

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                  • MikM Away
                    MikM Away
                    Mik
                    wrote on last edited by
                    #21

                    I can see cutting future grants. Cutting active studies, especially clinical trials, is exceptionally wasteful.

                    “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                    AxtremusA 1 Reply Last reply
                    • MikM Mik

                      I can see cutting future grants. Cutting active studies, especially clinical trials, is exceptionally wasteful.

                      AxtremusA Away
                      AxtremusA Away
                      Axtremus
                      wrote on last edited by
                      #22

                      @Mik said in It gets personal:

                      Cutting active studies, especially clinical trials, is exceptionally wasteful.

                      This is more appreciated in the biomed fields but less appreciated in the computer/infotech fields.

                      1 Reply Last reply
                      • taiwan_girlT Online
                        taiwan_girlT Online
                        taiwan_girl
                        wrote on last edited by
                        #23

                        Sorry for the thread hijack, but another area where the funding cuts are somewhat personal. A (distant) friend works in the Soybean Innovation Lab at the University of IL. They have lost their funding and are in the process of closing.

                        Illinois is the leading producer of soybeans in the United States, and the industry is crucial to Illinois’ economy. According to the Illinois Department of Agriculture, Illinois is the nation’s second-leading exporter of soybeans and ranks third in the export of agricultural goods as a whole, earning over $8 billion worth.

                        https://soybeaninnovationlab.illinois.edu

                        1 Reply Last reply
                        • jon-nycJ Offline
                          jon-nycJ Offline
                          jon-nyc
                          wrote on last edited by jon-nyc
                          #24

                          Johns Hopkins laid off 2k workers yesterday.

                          "You never know what worse luck your bad luck has saved you from."
                          -Cormac McCarthy

                          1 Reply Last reply
                          • HoraceH Offline
                            HoraceH Offline
                            Horace
                            wrote on last edited by Horace
                            #25

                            That's 247 American jobs and 2000 jobs in other countries.

                            https://thedailyrecord.com/2025/03/13/johns-hopkins-university-to-cut-2200-jobs-amid-lost-federal-funding/

                            Education is extremely important.

                            1 Reply Last reply
                            • jon-nycJ Offline
                              jon-nycJ Offline
                              jon-nyc
                              wrote on last edited by
                              #26

                              I can feel America getting greater already.

                              "You never know what worse luck your bad luck has saved you from."
                              -Cormac McCarthy

                              1 Reply Last reply
                              • MikM Away
                                MikM Away
                                Mik
                                wrote on last edited by Mik
                                #27

                                I thought the blanket J6 pardon smacked of laziness. Seems that is a trend. I approve of the goals but not the means.

                                “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                                HoraceH 1 Reply Last reply
                                • RenaudaR Offline
                                  RenaudaR Offline
                                  Renauda
                                  wrote on last edited by
                                  #28

                                  Sorry to learn of this jon. It seems so wasteful given the practical medical benefit that would have resulted. But as Blondie pointed out you and your team are smart, you’ll find a way.

                                  Elbows up!

                                  1 Reply Last reply
                                  • JollyJ Offline
                                    JollyJ Offline
                                    Jolly
                                    wrote on last edited by
                                    #29

                                    There will be blood.

                                    I've already given the roasted chicken example. I think that's what will be done.

                                    “Cry havoc and let slip the DOGE of war!”

                                    Those who cheered as J-6 American prisoners were locked in solitary for 18 months without trial, now suddenly fight tooth and nail for foreign terrorists’ "due process". — Buck Sexton

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                                    • MikM Mik

                                      I thought the blanket J6 pardon smacked of laziness. Seems that is a trend. I approve of the goals but not the means.

                                      HoraceH Offline
                                      HoraceH Offline
                                      Horace
                                      wrote on last edited by
                                      #30

                                      @Mik said in It gets personal:

                                      I thought the blanket J6 pardon smacked of laziness. Seems that is a trend. I approve of the goals but not the means.

                                      I don't think it's clear what those 2000 citizens of other countries were being paid to do, by the US taxpayers. This may or may not be a tragedy. But per se, it's what Maga was voted in to do.

                                      Education is extremely important.

                                      1 Reply Last reply
                                      • MikM Away
                                        MikM Away
                                        Mik
                                        wrote on last edited by
                                        #31

                                        That’s one example only and related to USAID. How many offshore employees did Jon’s study employ?

                                        I think my point on laziness stands.

                                        “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                                        HoraceH 1 Reply Last reply
                                        • MikM Mik

                                          That’s one example only and related to USAID. How many offshore employees did Jon’s study employ?

                                          I think my point on laziness stands.

                                          HoraceH Offline
                                          HoraceH Offline
                                          Horace
                                          wrote on last edited by
                                          #32

                                          @Mik said in It gets personal:

                                          That’s one example only and related to USAID. How many offshore employees did Jon’s study employ?

                                          I think my point on laziness stands.

                                          I'm lost regarding what we're actually talking about, but 83% of USAID programs were cut, after a 6 week review. We don't have any information about the Johns Hopkins programs that were cut, but I am sure it's safe to say that "people will die" narratives can be crafted. Cuts are hard, as those of us in the private sector who've been surrounded by layoffs our entire working lives will attest to. But I'm not going to get too precious about it.

                                          Education is extremely important.

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