It gets personal
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Hope things turn in the right direction for you @jon-nyc .
Killing a mosquito with a sledgehammer is not the right answer.
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It was a single U Grant originally for $6MM. I'm not exactly sure how much has been billed against it, my guess is roughly half.
We're looking into the possibility that one or two other center might be able to invoice the NIH directly for their participation based on the way the grant is worded, which would help. We will also fundraise against it both from interested biotechs and patients. We will also have patients send letters, especially patients in Alabama, North Carolina, South Carolina, and Utah which all have GOP senators and affected centers.
Senator Thom Tillis may not see the logic in cutting rare disease funding at UNC because Hamilton Hall was occupied last year. Ditto Mike Lee and UU.