Parents don't give anti-rejection meds, son dies.

[Doctor Phibes]

@LuFins-Dad said in Parents don't give anti-rejection meds, son dies.:

I was thinking more of the person further down the transplant list that didn’t receive a new heart…

Yeah, that's an even bigger deal.

Also, imagine how the parents of the donor feel.

[Mik]

I doubt they know who received it. Jon? But I still feel it. I have a friend who's on the heart transplant list. She's been living with an LVAD for over a year now.

[Doctor Phibes]

@Mik said in Parents don't give anti-rejection meds, son dies.:

I doubt they know who received it. Jon?

Yeah, I'm not sure - but somebody who used to post here did know who he'd received his from. It was a big deal to him.

[Mik]

I do remember that. KB it was.

[jon-nyc]

Right, so for HIPPA reasons the hospitals don’t share info.

However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

That’s what happened with KB

I can’t see these parents doing that.

[Rainman]

Of course you know that I know that you know that I know what you mean. Wink. Double-wink.

[Mik]

@jon-nyc said in Parents don't give anti-rejection meds, son dies.:

Right, so for HIPPA reasons the hospitals don’t share info.

However, the recipient can send a letter to the United Network for Organ Sharing (UNOS) who will pass it along to the donor family, which may or may not respond.

That’s what happened with KB

I can’t see these parents doing that.

Yeah, I can't either. At this point I'd first question their literacy, the ability to actually do that. If they passed that I can think of a whole lot of other reasons why they wouldn't.

[Rainman]

There should have been better oversight and quick intervention. What good does time in jail do, or some sort of other penalty. Nada

[taiwan_girl]

@Mik said in Parents don't give anti-rejection meds, son dies.:

KB it was.

DOnt mean to derail the forum thread, but does anybody know what happened to him?

[Mik]

He’s fine, still in Colorado as far as I know.