IT, can you share
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Wow.
Sharing in everyone else's concerns, IT. I hope it's just a matter of time. -
I'll pile on here, thanks for the update and prayers for improvements as time goes on. I'm not smart enough to understand everything you described about her, so forgive me but is she open to participating on this forum? I sure would love to see her name pop up in threads again (as I'm always glad when I see yours, IT).
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same as everybody else is saying!!! :couple_with_heart:
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Thank you for sharing, IT. It's a hard story to share, and the reality of living it has to be so much worse. You will be in our prayers. Please keep us posted on how things are going. This is not just a conversational phrase, I really want to know.
Hugs to all of you.
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We appreciate all the love, prayers, concern, and support. It certainly has changed our pattern -- we rarely go out to dinner since MS really can't enjoy the food, and planning meals for the family is a balance of the needs of the kids and what she might find palatable on any particular day. I had never thought much about the senses of taste and smell, and had no idea you could lose them like going blind or deaf. It's all bizarre. We're hope for small improvements...
Thanks again for your concern!
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We appreciate all the love, prayers, concern, and support. It certainly has changed our pattern -- we rarely go out to dinner since MS really can't enjoy the food, and planning meals for the family is a balance of the needs of the kids and what she might find palatable on any particular day. I had never thought much about the senses of taste and smell, and had no idea you could lose them like going blind or deaf. It's all bizarre. We're hope for small improvements...
Thanks again for your concern!
@ivorythumper said in IT, can you share:
we rarely go out to dinner since MS really can't enjoy the food
Yes. This is a real thing, and a huge problem. D2 lost 25 lb at the peak. Now, 14 months later, she's still struggling, but slowly, slowly improving.
No-nos include bacon, carbonated beverages.
Everything has to be spicy, or it tastes like cardboard (which is better than tasting like rotting meat).
Is this what MS is experiencing?
"Now look here, you Baltic gas passer... " - Mik, 6/14/08
The saying, "Lite is just one damn thing after another," is a gross understatement. The damn things overlap.
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@ivorythumper said in IT, can you share:
we rarely go out to dinner since MS really can't enjoy the food
Yes. This is a real thing, and a huge problem. D2 lost 25 lb at the peak. Now, 14 months later, she's still struggling, but slowly, slowly improving.
No-nos include bacon, carbonated beverages.
Everything has to be spicy, or it tastes like cardboard (which is better than tasting like rotting meat).
Is this what MS is experiencing?
@george-k said in IT, can you share:
@ivorythumper said in IT, can you share:
we rarely go out to dinner since MS really can't enjoy the food
Yes. This is a real thing, and a huge problem. D2 lost 25 lb at the peak. Now, 14 months later, she's still struggling, but slowly, slowly improving.
No-nos include bacon, carbonated beverages.
Everything has to be spicy, or it tastes like cardboard (which is better than tasting like rotting meat).
Is this what MS is experiencing?
Very much so. There is also this weird phenomenon where smells and tastes get mixed up, and always with repulsive associations.
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@ivorythumper said in IT, can you share:
we rarely go out to dinner since MS really can't enjoy the food
Yes. This is a real thing, and a huge problem. D2 lost 25 lb at the peak. Now, 14 months later, she's still struggling, but slowly, slowly improving.
No-nos include bacon, carbonated beverages.
Everything has to be spicy, or it tastes like cardboard (which is better than tasting like rotting meat).
Is this what MS is experiencing?
@george-k said in IT, can you share:
@ivorythumper said in IT, can you share:
we rarely go out to dinner since MS really can't enjoy the food
Yes. This is a real thing, and a huge problem. D2 lost 25 lb at the peak. Now, 14 months later, she's still struggling, but slowly, slowly improving.
No-nos include bacon, carbonated beverages.
Everything has to be spicy, or it tastes like cardboard (which is better than tasting like rotting meat).
Is this what MS is experiencing?
No bacon?
