IT, can you share
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wrote on 16 Dec 2021, 20:28 last edited by
Sorry to hear about MS and her ongoing health issues. Hope it starts to improve soon.
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wrote on 16 Dec 2021, 23:40 last edited by
Oh no.
Prayers that you and your boys continue to be healthy; and that MS recovers fully and soon.
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wrote on 17 Dec 2021, 00:36 last edited by jon-nyc
Wow I had no idea either. I hope you both see a full and complete recovery.
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wrote on 17 Dec 2021, 00:49 last edited by
@jon-nyc said in IT, can you share:
Wow I had no idea either. I hope you both see a full and complete recovery.
+1
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wrote on 17 Dec 2021, 03:18 last edited by
Wow.
Sharing in everyone else's concerns, IT. I hope it's just a matter of time. -
wrote on 17 Dec 2021, 12:18 last edited by
I'll pile on here, thanks for the update and prayers for improvements as time goes on. I'm not smart enough to understand everything you described about her, so forgive me but is she open to participating on this forum? I sure would love to see her name pop up in threads again (as I'm always glad when I see yours, IT).
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wrote on 18 Dec 2021, 23:12 last edited by
same as everybody else is saying!!! :couple_with_heart:
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wrote on 19 Dec 2021, 03:06 last edited by
Thank you for sharing, IT. It's a hard story to share, and the reality of living it has to be so much worse. You will be in our prayers. Please keep us posted on how things are going. This is not just a conversational phrase, I really want to know.
Hugs to all of you.
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wrote on 20 Dec 2021, 15:03 last edited by
We appreciate all the love, prayers, concern, and support. It certainly has changed our pattern -- we rarely go out to dinner since MS really can't enjoy the food, and planning meals for the family is a balance of the needs of the kids and what she might find palatable on any particular day. I had never thought much about the senses of taste and smell, and had no idea you could lose them like going blind or deaf. It's all bizarre. We're hope for small improvements...
Thanks again for your concern!
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We appreciate all the love, prayers, concern, and support. It certainly has changed our pattern -- we rarely go out to dinner since MS really can't enjoy the food, and planning meals for the family is a balance of the needs of the kids and what she might find palatable on any particular day. I had never thought much about the senses of taste and smell, and had no idea you could lose them like going blind or deaf. It's all bizarre. We're hope for small improvements...
Thanks again for your concern!
wrote on 20 Dec 2021, 16:49 last edited by@ivorythumper said in IT, can you share:
we rarely go out to dinner since MS really can't enjoy the food
Yes. This is a real thing, and a huge problem. D2 lost 25 lb at the peak. Now, 14 months later, she's still struggling, but slowly, slowly improving.
No-nos include bacon, carbonated beverages.
Everything has to be spicy, or it tastes like cardboard (which is better than tasting like rotting meat).
Is this what MS is experiencing?
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wrote on 20 Dec 2021, 17:44 last edited by
Prayers that the recovery is full and soon...
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@ivorythumper said in IT, can you share:
we rarely go out to dinner since MS really can't enjoy the food
Yes. This is a real thing, and a huge problem. D2 lost 25 lb at the peak. Now, 14 months later, she's still struggling, but slowly, slowly improving.
No-nos include bacon, carbonated beverages.
Everything has to be spicy, or it tastes like cardboard (which is better than tasting like rotting meat).
Is this what MS is experiencing?
wrote on 21 Dec 2021, 21:35 last edited by@george-k said in IT, can you share:
@ivorythumper said in IT, can you share:
we rarely go out to dinner since MS really can't enjoy the food
Yes. This is a real thing, and a huge problem. D2 lost 25 lb at the peak. Now, 14 months later, she's still struggling, but slowly, slowly improving.
No-nos include bacon, carbonated beverages.
Everything has to be spicy, or it tastes like cardboard (which is better than tasting like rotting meat).
Is this what MS is experiencing?
Very much so. There is also this weird phenomenon where smells and tastes get mixed up, and always with repulsive associations.
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@ivorythumper said in IT, can you share:
we rarely go out to dinner since MS really can't enjoy the food
Yes. This is a real thing, and a huge problem. D2 lost 25 lb at the peak. Now, 14 months later, she's still struggling, but slowly, slowly improving.
No-nos include bacon, carbonated beverages.
Everything has to be spicy, or it tastes like cardboard (which is better than tasting like rotting meat).
Is this what MS is experiencing?
wrote on 21 Dec 2021, 21:37 last edited by@george-k said in IT, can you share:
@ivorythumper said in IT, can you share:
we rarely go out to dinner since MS really can't enjoy the food
Yes. This is a real thing, and a huge problem. D2 lost 25 lb at the peak. Now, 14 months later, she's still struggling, but slowly, slowly improving.
No-nos include bacon, carbonated beverages.
Everything has to be spicy, or it tastes like cardboard (which is better than tasting like rotting meat).
Is this what MS is experiencing?
No bacon?
