I got an invitation from ….

[Tom-K]

Jon, our very own "Colleague" of RFK, Jr!

[Mik]

I can’t….bear…it.

[jon-nyc]

So my flights are canceled. I guess I’m going to dial in.

When I’m not shoveling.

[89th]

Make sure to wear your jeans

[LuFins Dad]

@jon-nyc said in I got an invitation from ….:

So my flights are canceled. I guess I’m going to dial in.

When I’m not shoveling.

Snorting Coke of your own toilet just isn’t the same.

[jon-nyc]

I’m watching this online. It’s just starting. I’ll livestream anything interesting.

[jon-nyc]

11 minutes in and it’s still the banner screen and hold music.

[jon-nyc]

My friend who’s there said there was a fire alarm and they evacuated the building and brought everyone back in. “And it was very cold outside FYI”. lol

[jon-nyc]

It’s starting for real now.

[jon-nyc]

Kennedy on stage.

[jon-nyc]

It seems to be about individualized gene therapies so far (like single patient diseases - ultra rare). Like that kid in Philadelphia Children’s. They have that kid doctors on stage too.

[jon-nyc]

The plausible mechanism pathway. That would be awesome for us but it’s only for ultra-rare, which has no formal definition but probably would exclude us.

https://www.fda.gov/news-events/press-announcements/fda-launches-framework-accelerating-development-individualized-therapies-ultra-rare-diseases