So, I did the 23andMe thing.
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@89th said in So, I did the 23andMe thing.:
Holy shit that sucks man. Glad you’re with a top doc though.
Straightup, I went to a rando ophthalmologist in the Ashburn area shortly after I got the referral, and they told me (1) I was already blind in many areas, (2) nothing could be done about it, and (3) he strongly suggested I go somewhere else because he has no experience with my disease.
That was a happy-cake kinda day.
After finding my current doc, turns out (1) wasn't true at all, and as long as I by God never miss my appointments, I'll most likely be okay. So, could be worse.
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I didn't realize it was that rare. Yes, it's fortunate that your ophthalmologist is in your area.
As for the 23 and Me....friend of mine did it and found out that there was some Chinese in her background. Hers was supposedly a full blooded Mexican family. After some snooping, it turned out great-grandma had something going on back in the day. The only one not laughing about this discovery was my friend's mother, who found out that her mother was the product of that affair. Ah, the things you learn.
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@89th said in So, I did the 23andMe thing.:
Holy shit that sucks man. Glad you’re with a top doc though.
Dit-to!
I guess we already know the answer to this, but: with all the research etc that your doc is involved with, is there any hope of cure coming down the pike at all?
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@Catseye3 said in So, I did the 23andMe thing.:
@89th said in So, I did the 23andMe thing.:
Holy shit that sucks man. Glad you’re with a top doc though.
Dit-to!
I guess we already know the answer to this, but: with all the research etc that your doc is involved with, is there any hope of cure coming down the pike at all?
No "cure," it's not really that kind of a thing. But really, if you just catch it early and stay serious about your appointments, chances are very high your eyesight stays intact. So the biggest thing is getting tested so that you know you have it. My doc tells me the emergency surgery isn't even super complicated—it just helps if you've done it before. People get screwed from this when they don't know they have it, or not take it seriously.
Also, your eyes flake off so much material that by the time you're 50 or so, the two parts of your eye don't really touch anymore, so chances become almost nil you'll have a serious spike after that.
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@Friday said in So, I did the 23andMe thing.:
As for the 23 and Me....friend of mine did it and found out that there was some Chinese in her background. Hers was supposedly a full blooded Mexican family. After some snooping, it turned out great-grandma had something going on back in the day. The only one not laughing about this discovery was my friend's mother, who found out that her mother was the product of that affair. Ah, the things you learn.
That is awesome.
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My wife's brother and wife and my oldest and my youngest did the DNA thing.
- Discovered wife's grandfather had hid his Jewish roots his entire life.
- Found a 90+ year old cousin of wife's mother still alive and have had a great re-union with her and found out lots of surprising family history.
- Had to come clean to my twin girls that they were IVF and I am not their biological father.
- Connected with the bio-dad and he is a very nice guy, has a bitchy 2nd wife that isn't happy about this, and found my girls have about 6 half-siblings.
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"Now look here, you Baltic gas passer... " - Mik, 6/14/08
The saying, "Lite is just one damn thing after another," is a gross understatement. The damn things overlap.
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Results are in: I am very, very much a bloody Limey.
I have some ancestors in Glasgow, Edinburgh and South Yorkshire, but the vast majority is from London. Freaking London. It's far an away the strongest match. 90+ percent.
I'll never hear the end of it from @Doctor-Phibes .
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@Aqua-Letifer You are in for sh*t.
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I mean, just look at this. It's not like it's some great-great-great so-and-so, it's everyone I'm related to.
FFS.
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Holy hell.
How accurate are these things, does anyone know? Like, what's the variability?
In the DNA ancestry portion, it gives you a list of other users you're related to and by how much.
I have 2 freaking people who are first cousins, once removed. One would be, according to 23andMe, a nephew of one of my biological parents, and one would be one of their first cousins.
That's... a... little close.
Sent them both messages, told them everything I know about my biological parents, asked if that sounded like anyone they know. Fuck it, worth a shot.
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@Aqua-Letifer said in So, I did the 23andMe thing.:
Holy hell.
How accurate are these things, does anyone know? Like, what's the variability?
In the DNA ancestry portion, it gives you a list of other users you're related to and by how much.
I have 2 freaking people who are first cousins, once removed. One would be, according to 23andMe, a nephew of one of my biological parents, and one would be one of their first cousins.
That's... a... little close.
Sent them both messages, told them everything I know about my biological parents, asked if that sounded like anyone they know. Fuck it, worth a shot.
So, that could be very interesting and certainly the outcomes are not predictable at all, at least initially.
As far as being related to people, many don’t even hang with their siblings or cousins, what makes you think that second cousin is going to be a big deal in your life? -
@Aqua-Letifer said in So, I did the 23andMe thing.:
Results are in: I am very, very much a bloody Limey.
I have some ancestors in Glasgow, Edinburgh and South Yorkshire, but the vast majority is from London. Freaking London. It's far an away the strongest match. 90+ percent.
I'll never hear the end of it from @Doctor-Phibes .
I’ll believe it when u start writing centre and colour. Or When using aluminium foil. Or start having diarrhoea.
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@Loki said in So, I did the 23andMe thing.:
So, that could be very interesting and certainly the outcomes are not predictable at all, at least initially.
As far as being related to people, many don’t even hang with their siblings or cousins, what makes you think that second cousin is going to be a big deal in your life?It's not like that for me. I've got a family and we've all got our problems but we're okay otherwise. I'm not looking to jump ship. I'm not looking to add people in my life, either.
I think it's one of those things that's hard to convey. Every single time I visit a doctor's and we go through the "does your family have any history of" list, I gotta say I don't know. When people ask me my ancestry, well, I knew my family's ancestry but it's not necessarily mine, at all. Having a family is different from knowing the circumstances behind your existence. I don't know shit about mine, from my birth on back. Absolutely nothing.
A buddy of mine was adopted. He went on this weird ass 10-year odyssey to find his biological parents. Turns out they were first cousins living in an Amish community. His birth brought great and terrible shame on the whole community. No one wanted to speak to him, obviously.
He's still glad he found out and I fully understand that.
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I get It and wasn’t speaking to you about infatuation with distant connections. I am as removed from mine as you are from yours.
As for your journey, I think the health stuff may ultimately be the least interesting and if yo hare ready to dive in to discovery I think that’s great. I know enough to know that you have no idea what you will find. It’s super personal and loved ones around you could be ambivalent.
It’s hard to make up for lack of shared experience. May be easier with a long lost sibling or half sibling. For some reason it’s easier to get the bond.
