I got an invitation from ….

[jon-nyc]

RFK Jr.

Seriously there’s supposed to be a big announcement regarding rare disease taking place next Monday in DC. HHS invited some leaders in rare disease to attend in person, and somehow I ended up in the list. To RSVP I had to confirm I’m a US citizen and they will check RealIDs at the door, as the invitations are individual specific and non-transferable. It’s also going to be live-streamed.

I went ahead and booked a flight (I’ll be home Saturday).

Will it be exciting and meaningful? Or did I just waste a grand to hear them tell me to drink raw milk thistle or whatever ?

[Axtremus]

Well, it may be a casting call for Cokeback Mountain 2. Break a leg!

[Mik]

Given your involvement, I’d guess Alpha-1 will benefit.

[taiwan_girl]

@jon-nyc Good luck and make TNCR proud!!!

[89th]

Make sure to pack your jeans!

Seriously, that is cool. Would be nice to know what announcement it is so I can make the right trades. I mean, so that health wins!