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The New Coffee Room

  1. TNCR
  2. General Discussion
  3. FIL is getting a trans operation

FIL is getting a trans operation

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  • 89th8 Offline
    89th8 Offline
    89th
    wrote on last edited by 89th
    #1

    He's 75. Wife is 72. They live about 20 minutes from us.

    In 2011, when he was 63, he woke up one day with blood in urine, among other indications of something wrong. Goes to doctor, finds out he has a 12" (or 12 pound, I can't recall) stage 4 cancerous tumor on one kidney, or somewhere close, I don't recall all the details. Immediately he goes for surgery, they remove it, chemo, etc... fast forward 2 years of the fight and he is cancer free, which is cliché to say but even the doctors didn't expect that. So he was both unlucky and very lucky in the span of a few years.

    As part of the process, he lost both kidneys (gets up at 330am for dialysis 3 times a week), lost his bladder (wears a colostomy bag), and his fingernails never recovered from the chemo. Prior to the cancer, he and his wife had just entered semi-retirement and had begun traveling 4-5 times per year around the world, but those trips were no longer possible, only 2-3 day local trips were.

    Anyway....at 1am he got a call from the Mayo Clinic where he's been on a transplant list.

    Wait, what did you think when I said trans? 🙂

    Has been seeing doctors, doing tests, and staying healthy in the off chance an old fart like him can get lucky. So it sounds like he is... they went down at 4am today and are doing more tests. But fingers crossed the transplant operation, and resulting recovery process, goes well for him.

    No need for well wishes here, I already know how kind you all are! If anyone has experience with post-trans(plant) recoveries, I'd be curious how it goes.

    1 Reply Last reply
    • JollyJ Offline
      JollyJ Offline
      Jolly
      wrote on last edited by
      #2

      Don't have a clue, other than the meds. But these people might...

      https://www.kidney.org/atoz/content/immunosuppression

      “Cry havoc and let slip the DOGE of war!”

      Those who cheered as J-6 American prisoners were locked in solitary for 18 months without trial, now suddenly fight tooth and nail for foreign terrorists’ "due process". — Buck Sexton

      1 Reply Last reply
      • MikM Away
        MikM Away
        Mik
        wrote on last edited by
        #3

        I wish your in laws every success here.

        “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

        1 Reply Last reply
        • George KG Offline
          George KG Offline
          George K
          wrote on last edited by George K
          #4

          Sounds like it was a bladder, not kidney, cancer. Those frequency present with hematuria - though, of course, so do renal tumors.

          When you say he "lost" his kidneys, I assume you mean he lost kidney function, not that the kidneys were actually removed. Perhaps a complication of the chemo.

          A kidney transplant is a relatively small, and (believe it or not) simple operation. Hook up an artery, a vein, and the ureter, and you're good to go. The fact that he no longer has a bladder might actually make it easier since the "sewing" part might be simpler for that hookup.

          OTOH, if there's lots of scarring after his big operation, things might take a bit longer.

          Regardless, best of luck to him!

          "Now look here, you Baltic gas passer... " - Mik, 6/14/08

          The saying, "Lite is just one damn thing after another," is a gross understatement. The damn things overlap.

          89th8 1 Reply Last reply
          • HoraceH Offline
            HoraceH Offline
            Horace
            wrote on last edited by
            #5

            I wish him the best of luck in his transition into a body he is more comfortable and happy with.

            Education is extremely important.

            1 Reply Last reply
            • JonJ Offline
              JonJ Offline
              Jon
              wrote on last edited by
              #6

              I know what it’s like to identify as a person with fully functioning organs after being assigned end stage organ disease in middle age.

              MikM 89th8 2 Replies Last reply
              • AxtremusA Away
                AxtremusA Away
                Axtremus
                wrote on last edited by
                #7

                Good luck to 89th’s FIL.

                1 Reply Last reply
                • JonJ Jon

                  I know what it’s like to identify as a person with fully functioning organs after being assigned end stage organ disease in middle age.

                  MikM Away
                  MikM Away
                  Mik
                  wrote on last edited by
                  #8

                  @Jon said in FIL is getting a trans operation:

                  I know what it’s like to identify as a person with fully functioning organs after being assigned end stage organ disease in middle age.

                  You’re definitely a success story there. May in always be so.

                  “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                  1 Reply Last reply
                  • George KG George K

                    Sounds like it was a bladder, not kidney, cancer. Those frequency present with hematuria - though, of course, so do renal tumors.

                    When you say he "lost" his kidneys, I assume you mean he lost kidney function, not that the kidneys were actually removed. Perhaps a complication of the chemo.

                    A kidney transplant is a relatively small, and (believe it or not) simple operation. Hook up an artery, a vein, and the ureter, and you're good to go. The fact that he no longer has a bladder might actually make it easier since the "sewing" part might be simpler for that hookup.

                    OTOH, if there's lots of scarring after his big operation, things might take a bit longer.

                    Regardless, best of luck to him!

                    89th8 Offline
                    89th8 Offline
                    89th
                    wrote on last edited by
                    #9

                    @George-K said in FIL is getting a trans operation:

                    Sounds like it was a bladder, not kidney, cancer. Those frequency present with hematuria - though, of course, so do renal tumors.

                    When you say he "lost" his kidneys, I assume you mean he lost kidney function, not that the kidneys were actually removed. Perhaps a complication of the chemo.

                    A kidney transplant is a relatively small, and (believe it or not) simple operation. Hook up an artery, a vein, and the ureter, and you're good to go. The fact that he no longer has a bladder might actually make it easier since the "sewing" part might be simpler for that hookup.

                    OTOH, if there's lots of scarring after his big operation, things might take a bit longer.

                    Regardless, best of luck to him!

                    Thanks George. I believe one kidney was removed as part of the cancer surgery, but indeed he does still "have" the other kidney, albeit barely functioning. From what I've heard, the doctors will indeed be placing the new kidney into "an available space" inside and connecting t3h tubez (veins, etc). He'll continue to use the col bag for pee/poop so from a simple perspective, this transplant will basically allow him not to require dialysis as his (new) kidney should help filter the blood... at least until he's closer to 90.

                    It's remarkable how fast the process is. 1am call... at Mayo (which is 90 minutes away) by 4am, and the procedure I think is happening as we speak (around 10-11am).

                    1 Reply Last reply
                    • JonJ Jon

                      I know what it’s like to identify as a person with fully functioning organs after being assigned end stage organ disease in middle age.

                      89th8 Offline
                      89th8 Offline
                      89th
                      wrote on last edited by
                      #10

                      @Jon said in FIL is getting a trans operation:

                      I know what it’s like to identify as a person with fully functioning organs after being assigned end stage organ disease in middle age.

                      Indeed! Do you take medications today, such as anti-rejection meds?

                      1 Reply Last reply
                      • JonJ Offline
                        JonJ Offline
                        Jon
                        wrote on last edited by
                        #11

                        Oh yes. Every day for the rest of my life.

                        1 Reply Last reply
                        • LuFins DadL Offline
                          LuFins DadL Offline
                          LuFins Dad
                          wrote on last edited by
                          #12

                          How much did you tip the surgeon?

                          The Brad

                          taiwan_girlT 1 Reply Last reply
                          • LuFins DadL LuFins Dad

                            How much did you tip the surgeon?

                            taiwan_girlT Offline
                            taiwan_girlT Offline
                            taiwan_girl
                            wrote on last edited by
                            #13

                            @LuFins-Dad said in FIL is getting a trans operation:

                            How much did you tip the surgeon?

                            555 LuFins. Depends on how good the service was!

                            1 Reply Last reply
                            • bachophileB Offline
                              bachophileB Offline
                              bachophile
                              wrote on last edited by
                              #14

                              Best of luck. The “available space” is always the iliac fossa and the vessels connected are iliac vessels. It’s an easily accessible anatomical space and doesn’t involve messing around in the peritoenum so as far as surgery goes it’s not so morbid. The big issue is of course immunosuppressants to prevent rejections. But the quality of life is much better than dialysis.

                              89th8 1 Reply Last reply
                              • brendaB Offline
                                brendaB Offline
                                brenda
                                wrote on last edited by
                                #15

                                Congratulations to FIL for getting this opportunity. Happy for him, your MIL, and the whole family. Will be nice for your kids to have their grandpa for more years. Best wishes!

                                1 Reply Last reply
                                • MikM Away
                                  MikM Away
                                  Mik
                                  wrote on last edited by
                                  #16

                                  So how's he doing? Well, I hope.

                                  “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                                  89th8 1 Reply Last reply
                                  • bachophileB bachophile

                                    Best of luck. The “available space” is always the iliac fossa and the vessels connected are iliac vessels. It’s an easily accessible anatomical space and doesn’t involve messing around in the peritoenum so as far as surgery goes it’s not so morbid. The big issue is of course immunosuppressants to prevent rejections. But the quality of life is much better than dialysis.

                                    89th8 Offline
                                    89th8 Offline
                                    89th
                                    wrote on last edited by
                                    #17

                                    @bachophile said in FIL is getting a trans operation:

                                    Best of luck. The “available space” is always the iliac fossa and the vessels connected are iliac vessels. It’s an easily accessible anatomical space and doesn’t involve messing around in the peritoenum so as far as surgery goes it’s not so morbid. The big issue is of course immunosuppressants to prevent rejections. But the quality of life is much better than dialysis.

                                    Good info, thanks!

                                    1 Reply Last reply
                                    • MikM Mik

                                      So how's he doing? Well, I hope.

                                      89th8 Offline
                                      89th8 Offline
                                      89th
                                      wrote on last edited by
                                      #18

                                      @Mik said in FIL is getting a trans operation:

                                      So how's he doing? Well, I hope.

                                      So far so good. The kidney took a bit to “take” but seems to show signs it’s settling in. They’ll stay nearby the Mayo for 3 weeks as he goes to daily appts.

                                      1 Reply Last reply
                                      • MikM Away
                                        MikM Away
                                        Mik
                                        wrote on last edited by
                                        #19

                                        Excellent.

                                        “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                                        1 Reply Last reply
                                        • George KG Offline
                                          George KG Offline
                                          George K
                                          wrote on last edited by
                                          #20

                                          Good news indeed. Kidney transplants are a “mature” technology. I remember doing them 40(!) years ago when they were a big deal - at least from a immuno suppression standpoint. As I said, the surgery is not all that complicated.

                                          Glad things went well and here’s hoping that he continues to recover.

                                          "Now look here, you Baltic gas passer... " - Mik, 6/14/08

                                          The saying, "Lite is just one damn thing after another," is a gross understatement. The damn things overlap.

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