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The New Coffee Room

  1. TNCR
  2. General Discussion
  3. 8 years ago about now

8 years ago about now

Scheduled Pinned Locked Moved General Discussion
26 Posts 18 Posters 273 Views
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  • KlausK Offline
    KlausK Offline
    Klaus
    wrote on last edited by Klaus
    #16

    8 years is great! Here's to many more years of a functioning lung!

    In the context of your post, I was looking something up related to lung transplants and stumbled upon this study.

    Do you have an explanation for the differences in outcome reported in the study? Their reasoning about universal health care and stuff seems a little superficial.

    jon-nycJ 1 Reply Last reply
    • AxtremusA Offline
      AxtremusA Offline
      Axtremus
      wrote on last edited by
      #17

      Happy anniversary!
      Looking back, how do you feel about it?
      What's ahead?

      1 Reply Last reply
      • KlausK Klaus

        8 years is great! Here's to many more years of a functioning lung!

        In the context of your post, I was looking something up related to lung transplants and stumbled upon this study.

        Do you have an explanation for the differences in outcome reported in the study? Their reasoning about universal health care and stuff seems a little superficial.

        jon-nycJ Online
        jon-nycJ Online
        jon-nyc
        wrote on last edited by jon-nyc
        #18

        @Klaus said in 8 years ago about now:

        8 years is great! Here's to many more years of a functioning lung!

        In the context of your post, I was looking something up related to lung transplants and stumbled upon this study.

        Do you have an explanation for the differences in outcome reported in the study? Their reasoning about universal health care and stuff seems a little superficial.

        I don’t. A few comments:

        1. They don’t compare Socio-economic status. That correlates decently with compliance with medical directives over the long term, such as taking your meds on time.

        2. They mention tacrolimus not being approved for lung transplant until 2021. That’s technically true (it was approved 3 years ago today, my 5 year transplant anniversary, based not on a study but on ‘real world evidence’) but it was used off label for many years prior to that. The drug (FK506) was pioneered in Pittsburgh for liver transplants and is used for most if not all solid organ transplants in the US.

        3. I think there’s something to be said about the formal follow-up period that CMS, the payor behind Medicare, has implemented. They judge centers on 1 year outcomes. What if they measured and published 5 year outcomes? I suspect they’d improve.

        Only non-witches get due process.

        • Cotton Mather, Salem Massachusetts, 1692
        1 Reply Last reply
        • LuFins DadL Offline
          LuFins DadL Offline
          LuFins Dad
          wrote on last edited by
          #19

          And don’t forget, it’s North America minus Canada. You can expect that much excess mortality from a random drug addled AR-15 wiping them out.

          The Brad

          1 Reply Last reply
          • P Offline
            P Offline
            Pablo
            wrote on last edited by
            #20

            Congratulations, Jon. Glad you're still here. I wish you a long, healthy, prosperous life.

            Only reason I said anything the other day is because an otherwise intelligent, politically astute man should know better than to giggle in delight at the near assassination of a former president and wish him dead via heart attack.

            Let’s move on from that.

            1 Reply Last reply
            • RichR Online
              RichR Online
              Rich
              wrote on last edited by
              #21

              Congrats on the milestone, Jon. There was a thread at the forum across the way a while back... Along the lines of 'Where do you see yourself/or hope to be in 'x' years?' Waiting for the transplant you answered "Not just alive to see the boy, but to be able to have an active part of part of his life!"

              Great for you both, you've been able to meet that goal. To many more lungiversaries!

              1 Reply Last reply
              • C Offline
                C Offline
                cathys
                wrote on last edited by
                #22

                That is fantastic - Jon wishing you a very happy lungiversary milestone.

                1 Reply Last reply
                • Aqua LetiferA Offline
                  Aqua LetiferA Offline
                  Aqua Letifer
                  wrote on last edited by
                  #23

                  Awesome, jon!

                  Please love yourself.

                  1 Reply Last reply
                  • CopperC Offline
                    CopperC Offline
                    Copper
                    wrote on last edited by
                    #24

                    image.png

                    MikM 1 Reply Last reply
                    • CopperC Copper

                      image.png

                      MikM Away
                      MikM Away
                      Mik
                      wrote on last edited by
                      #25

                      @Copper consistency. 😄

                      “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

                      1 Reply Last reply
                      • F Offline
                        F Offline
                        Friday
                        wrote on last edited by
                        #26

                        You are a miracle Jon. I remember being delighted and amazed at hearing about that 5k. Happy Lungiversary.

                        1 Reply Last reply
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