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The New Coffee Room

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Shit

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  • taiwan_girlT Online
    taiwan_girlT Online
    taiwan_girl
    wrote on last edited by
    #54

    👩‍❤️‍👨

    1 Reply Last reply
    • CopperC Offline
      CopperC Offline
      Copper
      wrote on last edited by
      #55

      Sorry to hear this, I hope the ICU can help

      1 Reply Last reply
      • George KG George K

        Any information on what caused her sudden decline?

        KlausK Offline
        KlausK Offline
        Klaus
        wrote on last edited by Klaus
        #56

        @George-K said in Shit:

        Any information on what caused her sudden decline?

        Just received a somewhat encouraging update. She seems to be stable at the moment. Main problem is still kidney / urea nitrate. From what the doctors say, it's better to reduce the level slowly. She gets some CPAP breathing support with oxygen. Dexamethasone as a precaution. They are considering to go from PD to hemo-dialysis if the former is not working well enough.

        I guess the appropriate American term for the situation is SNAFU.

        1 Reply Last reply
        • MikM Away
          MikM Away
          Mik
          wrote on last edited by
          #57

          Klaus, I am so sorry she and you are having to go through this. Has to be heartbreaking. Hoping for recovery.

          “I am fond of pigs. Dogs look up to us. Cats look down on us. Pigs treat us as equals.” ~Winston S. Churchill

          1 Reply Last reply
          • George KG Offline
            George KG Offline
            George K
            wrote on last edited by
            #58

            OK - CPAP is much better than being on a ventilator. Presumably she's not intubated.

            Uremia can cause the symptoms that you described in your original post - diarrhea, nausea, vomiting, and ultimately confusion.

            Hopefully they'll get her BUN down as quickly as safe.

            Inserting a temporary hemodyalisis access port is not a big deal. That would be a reasonable thing to do if the PD isn't working.

            "Now look here, you Baltic gas passer... " - Mik, 6/14/08

            The saying, "Lite is just one damn thing after another," is a gross understatement. The damn things overlap.

            KlausK 1 Reply Last reply
            • George KG George K

              OK - CPAP is much better than being on a ventilator. Presumably she's not intubated.

              Uremia can cause the symptoms that you described in your original post - diarrhea, nausea, vomiting, and ultimately confusion.

              Hopefully they'll get her BUN down as quickly as safe.

              Inserting a temporary hemodyalisis access port is not a big deal. That would be a reasonable thing to do if the PD isn't working.

              KlausK Offline
              KlausK Offline
              Klaus
              wrote on last edited by
              #59

              @George-K said in Shit:

              Hopefully they'll get her BUN down as quickly as safe.

              From what I understand, her BUN level was well over 200 <insert some unit whose name I forgot here, mg/dl?>, which normally is supposed to be below 20.

              George KG JollyJ 2 Replies Last reply
              • KlausK Klaus

                @George-K said in Shit:

                Hopefully they'll get her BUN down as quickly as safe.

                From what I understand, her BUN level was well over 200 <insert some unit whose name I forgot here, mg/dl?>, which normally is supposed to be below 20.

                George KG Offline
                George KG Offline
                George K
                wrote on last edited by
                #60

                @Klaus said in Shit:

                BUN level was well over 200

                That's amazingly high, and it didn't happen over a few days. I'd guess her PD catheter wasn't working well for quite a while.

                "Now look here, you Baltic gas passer... " - Mik, 6/14/08

                The saying, "Lite is just one damn thing after another," is a gross understatement. The damn things overlap.

                1 Reply Last reply
                • markM Offline
                  markM Offline
                  mark
                  wrote on last edited by
                  #61

                  I hope she quickly takes a turn for the better. I've been keeping you and your family in my thoughts.

                  Aqua LetiferA 1 Reply Last reply
                  • markM mark

                    I hope she quickly takes a turn for the better. I've been keeping you and your family in my thoughts.

                    Aqua LetiferA Offline
                    Aqua LetiferA Offline
                    Aqua Letifer
                    wrote on last edited by
                    #62

                    @mark said in Shit:

                    I hope she quickly takes a turn for the better. I've been keeping you and your family in my thoughts.

                    +1. Very sorry you and your mom are going through this. 😞 I hope things turn around as quickly as possible.

                    Please love yourself.

                    1 Reply Last reply
                    • KlausK Klaus

                      @George-K said in Shit:

                      Hopefully they'll get her BUN down as quickly as safe.

                      From what I understand, her BUN level was well over 200 <insert some unit whose name I forgot here, mg/dl?>, which normally is supposed to be below 20.

                      JollyJ Offline
                      JollyJ Offline
                      Jolly
                      wrote on last edited by
                      #63

                      @Klaus said in Shit:

                      @George-K said in Shit:

                      Hopefully they'll get her BUN down as quickly as safe.

                      From what I understand, her BUN level was well over 200 <insert some unit whose name I forgot here, mg/dl?>, which normally is supposed to be below 20.

                      Anything that high, I don't even titrate, just report out as >150.

                      “Cry havoc and let slip the DOGE of war!”

                      Those who cheered as J-6 American prisoners were locked in solitary for 18 months without trial, now suddenly fight tooth and nail for foreign terrorists’ "due process". — Buck Sexton

                      L 1 Reply Last reply
                      • JollyJ Jolly

                        @Klaus said in Shit:

                        @George-K said in Shit:

                        Hopefully they'll get her BUN down as quickly as safe.

                        From what I understand, her BUN level was well over 200 <insert some unit whose name I forgot here, mg/dl?>, which normally is supposed to be below 20.

                        Anything that high, I don't even titrate, just report out as >150.

                        L Offline
                        L Offline
                        Loki
                        wrote on last edited by
                        #64

                        Hoping for the best for you. The roller coaster ride you’ve described is very frightening. It’s amazing though how treatment can turn things around quickly at times.

                        1 Reply Last reply
                        • kluursK Offline
                          kluursK Offline
                          kluurs
                          wrote on last edited by
                          #65

                          Hope things stabilize soon.

                          1 Reply Last reply
                          • KlausK Offline
                            KlausK Offline
                            Klaus
                            wrote on last edited by
                            #66

                            Thanks, everyone!

                            1 Reply Last reply
                            • KlausK Offline
                              KlausK Offline
                              Klaus
                              wrote on last edited by Klaus
                              #67

                              Latest update: On the positive side, BUN is getting better, lung is still good. On the negative side, there are new problems. She had multiple seizures this night. She was intubated to prevent suffocation. Still very somnolent - this should have improved due to the improved BUN levels. They checked for meningitis (analysis of spinal cord water), but with no result. Next up: MRT of the brain, neurology dep. gets involved. As far as I understand, they are puzzled about the seizures because they fit neither to the BUN problems nor to COVID-19.

                              1 Reply Last reply
                              • George KG Offline
                                George KG Offline
                                George K
                                wrote on last edited by
                                #68

                                Man, that's rough. The falling BUN is a good thing, to be expected with dialysis (are they doing HD now?).

                                Causes of seizures, as I'm sure you know are legion. Anything from metabolic issues, to drug interactions, to intra-cerebral events.

                                Hopefully they'll get a handle on what's causing this - MRI is cartainly a good first step.

                                "Now look here, you Baltic gas passer... " - Mik, 6/14/08

                                The saying, "Lite is just one damn thing after another," is a gross understatement. The damn things overlap.

                                KlausK 1 Reply Last reply
                                • George KG George K

                                  Man, that's rough. The falling BUN is a good thing, to be expected with dialysis (are they doing HD now?).

                                  Causes of seizures, as I'm sure you know are legion. Anything from metabolic issues, to drug interactions, to intra-cerebral events.

                                  Hopefully they'll get a handle on what's causing this - MRI is cartainly a good first step.

                                  KlausK Offline
                                  KlausK Offline
                                  Klaus
                                  wrote on last edited by
                                  #69

                                  @George-K said in Shit:

                                  Causes of seizures, as I'm sure you know are legion.

                                  Actually, I have no clue. How does one find out about the cause?

                                  1 Reply Last reply
                                  • George KG Offline
                                    George KG Offline
                                    George K
                                    wrote on last edited by
                                    #70

                                    Diagnosing the cause of seizures is frequently a matter of eliminating stuff (like the stuff I mentioned above). The important thing is to rule out something “structural” in the brain - tumor, stroke, etc). In your mom’s case, I hope it’s something metabolic and fixable.

                                    "Now look here, you Baltic gas passer... " - Mik, 6/14/08

                                    The saying, "Lite is just one damn thing after another," is a gross understatement. The damn things overlap.

                                    1 Reply Last reply
                                    • KlausK Offline
                                      KlausK Offline
                                      Klaus
                                      wrote on last edited by
                                      #71

                                      The neurologist chimed in, and according to him the seizures are consistent with the high BUN levels.

                                      1 Reply Last reply
                                      • George KG Offline
                                        George KG Offline
                                        George K
                                        wrote on last edited by
                                        #72

                                        https://www.epilepsy.com/living-epilepsy/epilepsy-and/professional-health-care-providers/co-existing-disorders/renal-0

                                        "Now look here, you Baltic gas passer... " - Mik, 6/14/08

                                        The saying, "Lite is just one damn thing after another," is a gross understatement. The damn things overlap.

                                        1 Reply Last reply
                                        • KlausK Offline
                                          KlausK Offline
                                          Klaus
                                          wrote on last edited by Klaus
                                          #73

                                          Thanks for the link! That seems to be exactly what they explained.

                                          The nephrologists also explained why they stick to PD. According to them, if they switch to HD, even it's only temporary, it may make it impossible to ever go back to PD. BUN and creatinine levels are still very high (something like 150 for BUN now; creatinine was supposedly at 17, which, as far as I understand it, is also through the roof), hence it's not a miracle that things get better only very slowly.

                                          @George-K do you have insight into the kind of effort that it takes to perform a MRI of an ICU patient who is presumably connected to all kinds of devices, can hardly breathe etc. and - in this case - is infectious with COVID-19. I guess that must be a massive amount of work and organization.

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