Baby healed in world’s first customized gene therapy

[jon-nyc]

Crispr for one.

Here’s a gift link.

https://www.nytimes.com/2025/05/15/health/gene-editing-personalized-rare-disorders.html?unlocked_article_code=1.HU8.TvJ1.QDEi2ouJHc8a&smid=url-share

[Horace]

That's pretty awesome. We'll also presumably save a lot of medical expenses with those sorts of treatments.

[jon-nyc]

Yeah but the ‘one-and-done’ genetic treatments, at least for rare disease, are priced in the low single digit millions.

[Mik]

For now. I wonder how much we spend in other ways on rare genetic diseases. How many millions have been spent on Alpha 1 transplants and other related treatments. How much better if we could fix it from the start.

[Mik]

Of course, then one could not be non-GMO. That'll stir up the tree huggers and anti-vaxxers.

[LuFins Dad]

@jon-nyc said in Baby healed in world’s first customized gene therapy:

Yeah but the ‘one-and-done’ genetic treatments, at least for rare disease, are priced in the low single digit millions.

In the US. In the Philippines they are going for $78 and a carton of Marlboro.

[LuFins Dad]

@Mik said in Baby healed in world’s first customized gene therapy:

Of course, then one could not be non-GMO. That'll stir up the tree huggers and anti-vaxxers.

Then don’t eat them… or take the therapy. It’s your choice.

Of course, the mutant flesh eating zombies will affect everyone..